Hello folks, comrades, fellow A C D F (Anterior Cervical Discectomy with Fusion) patients, post or pre op.
Its been a long haul over the last 21 months. The immediate outcome of the operation was excellent I could actually have the use of my left arm and the left little finger and ring finger respectively which was a God Send, and we both congratulated my neurosurgeon and told everyone how impressed we were and such a relief, could actually have some of my independence back again, I was able to undo jars, pick up a mug of coffee without it slipping through my hands, with coffee everywhere etc…dressing myself being able to do simple things we all take for granted. Even though I still have problems in putting my socks on, my boots on mainly on the left side and arm, amongst others little things we would take for granted.
And, YES, it was the scariest thing I have ever had to endure it scared the shite out of me,and my darling hubby, God Bless. As I thought I wasn’t come back to my darling hubby and our gorgeous baby girl Daisy May puss cat I would sob myself to sleep every night until the op, and yet, we had to wait 4 years for the operation, after my neurosurgeon found that my C5 was also prolapsed at Christmas 2012 and was put on another longer waiting list for a Double Level ACDF! But with the LORD with us every step of the way. We are so Thankful for you dear Lord you brought us as people, a couple, man and wife through this bad and trying times and made us stronger for sure. However We wouldn’t want to go through this again lol.
During this time through the healing months, the first 6 weeks having to keep my head in perfect position and held in position with a neck brace for the first six weeks to ensure the two replaced C5 & C6 discs, Carbon Fibre Cages with fragments of the prolapsed discs which were removed, the first 6 weeks was the most important time of healing process to allow the two cages to start fusing with C7 and C4 discs, and fuse together in the correct position. So it meant keeping head upright, still and neck straight. And, Not being able to drink from a normal mug or from a bottle of water, I had to have one of these hard plastic which had a straw attached into the lid so could drink from that all the time now and took alot of the stress and frustration most of the time, even though it took each day to be positive’ as having a positive mind-set will help with a speedy recovery and convalescence.💐🌷❤ My darling hubby was my “Rock” through all o this, we got through each day with a prayers and doing what we had to do each and every day. We were told by Sepahi, it would take at least a year plus for the discs to heal properly, maybe two years. We haven’t reached the full two years as yet. At present the brachilalgia has started up again so we may have to report back to our GP Dr Anna Sayeda. Soon before it gets to cold and damp over the Autumn and Winter months.😃☕💐💕xxx
As for sleep, I had to sleep either completely flat or sitting up against the wall. No sleep with the pain and the sweeping around both shoulders going into the neck completely swollen and extremely bruised.
Was told they had to go through several levels and were several rows of internal stitches. The incision was 2-3 three inches in length on the left side of my neck. They had to go in and move everything o the side, the muscles,tendons, the esophagus etc…to get to the spine and discs. We had already spent months preparing for this operation and stories it well, researched on you tube as well where we found to video of an American neurosurgeon performing the same operation and we found also many other, mainly women, who were sharing videos of their post op home care, after care we should have been told, and the emotional side of the operation, we both found inspiring and very helpful indeed. So I started making my own videos, Josh took the Nokia and started filming my post op progress and feeling etc..we posted up in Facebook and on our YouTube channel.
All my notes you will find here in my blog site to help others going into their own ACDF Journey. You can me anything of the operation before and after, if I can I will. Hold a hun and give a sisterly hugs. Thank you “Jacqui” for all you inspiration and Prayers 💕 xx
Meanwhile, the first year went well and my neck healed up extremely well and I still had 80% of my grip instead of 25%- 15% as before the operation. Mr Sepahi was extremely happy with my recovery and healing etc.Within the start of the next year being second year post op, even though the compressed C6 root nerve was released when the compressing prolapsed C4/5 & C5/6 were removed and nerve root adjusted accordingly. Knowing that the feeling would come back or may not. That I would still be able to experience the same Brachialgia down my left arm and hand as it was before the operation, but would not increase. Just as well really, but disappointed with the outcome as it looks fulltime. I still have that Brachialgia, drop my Samsung Tablet alot of the time, can only still carry one mug of coffee at one time not two, and fill dinner plate. Sometimes even an A4 sheet of paper slip through my finger like a knife through butter, is so distressing, not disorienting’ looking for the right word…I had the word but it’s gone for the now.
This is what the Heavy Meds does! I am still unable to use the hoover and lift anything heavy, I still feel in the back of my neck, which still swells up. The scar has still not disappeared, not that vanity be the case Not At All! But would have thought it would have gone by now. Here is still a lump under the scar and can still feel a nerve yeuck, shiver shiver. And the point that am till going trough the Brachialgia is still in flare up as with my Sciatica all down my left side and now more recently OA in my knees lol
After several post-op follow up appointments at the Wessex Neuro Unit at Southampton General with Mr Sepahi, Physio etc…Monthly GP appointments to review healing and recovery. Well, we are now 21 days Post-Op today with it sounds a long time but it is still the same. With the climate change and colder weather storming in bless. I have had to Accept the way it is and get o with each and every day. It gets mighty frustrating as one can imagine. Yes, this is the word I was looking for earlier lol. These meds mess with your concentration, great fatigue, some confusion and all. It sometimes feels that am not in control. But day to day is the only way can fight this and deal with each day as it come bless. It’s 07.46hrs already have been continuing my pain journal, as I have found a few people have either liked or regards to the posts have been putting up since 2010 and 2014. Have made a mug of milky decafe with honey. I still can’t sleep, with sleep deprivation big time. Well folks am gonna bring to a close for the now.
NOTES: I have completed an Allery List Medical and Non -Medical for future Reference…stored as pdf for medical and support team only!
This written by Elizabeth Christian…
Copyrighted (c) 9/09/2016 4.30am til 8am.